So what have I been doing in those two years?
Surviving, learning, and appreciating life.
There is nothing like a diagnosis like Type 1 Diabetes to put things into perspective. Life is fragile. Life is precious. Never EVER take it for granted.
Don't get me wrong, I am TIRED. Not just I need a nap tired, like OMG I could run screaming out of the house at any minute tired.
They don't tell you managing a young child with Type 1 will be all consuming. Especially, a child that does not feel his highs or lows. Life is a constant and never ending math assignment. How many carbs are in that food? Should I bolus it all up front? Oh crud, his blood sugar is climbing in warp speed, how much more should I give? It can go on and on and on.....24/7. I am here....I am a pancreas.
But don't you have it under control? um, say what? There is no control with Type 1. We manage. We manage the numbers one number at a time and move on. We analyze, we ponder, we equate, but there is no control. Our bodies are constantly changing, moving, growing and we eat different foods everyday. Put that into a little boy who never stops moving and well, you get what I mean.
His A1C at diagnosis was a whopping 10.5. Last visit it was 6.4... Amazing after the strip recalls and growth spurts. His blood sugar is in range a whopping 70% of the time all thanks to Dex.
There will always be highs and there will always be lows. Just the name of the game. Pump sites will go bad, he will get sick, there will be ketones, there will be lows and scary lows at that. But the thing I learned the most from the last two years...... type 1 will not win. It can't. We will jump, we will play, we will live. It is hard, but until there is a cure, we have no choice.
I am so glad I can take care of my boy for now. Someday, he will have to do it all on his own. I know the burnout that occurs. I pray he finds someone who will take care of him, who wants to learn, who is supportive. I will always be there. I will never give up.
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